I have been diagnosed with Eosinophilic Esophagitis (EoE), a chronic allergic inflammatory condition in my esophagus. This is a resource page to help other EoE sufferers find information in one place.
I’m glad you are here and hope these resources are helpful.
I also wish neither of us were here. This is an awful disease and I pray a cure will be found quickly for the sake of those who have it and for the sake of the parents who care for children with this disease. May God give each of us strength each day.
Please note that there are numerous Facebook groups related to EoE, but I have not listed them here since I am no longer on Facebook. If you do a search on Facebook, you will find them.
Books About Eosinophilic Esophagitis
Books for Children
These books are specifically written for children to help them understand their EoE.
Macaroni Isn’t The Same Without Cheese: Danny’s story about his Eosinophilic EsophagitisEating Isn’t Always Easy: Ben’s story about his Eosinophilic Esophagitis
Personal EoE Stories
Each year there are more books available about eosinophilic esophagitis, including personal stories.
A Mother’s Journey to Diagnosis with Her Son: Eosinophilic EsophagitisFoods, Moods & Isms: Living the Eosinophilic LifeMy Real-World Guide for Eosinophilic Esophagitis.: A guide to helping children, parents, and anyone else navigate through the thoughts and feelings associated with Eosinophilic Esophagitis.
Books About EoE and Meals, Food, and More
A Six Food Family Avoidance Diet For Eosinophilic EsophagitisYour Child and Eosinophilic Esophagitis: Dietary Guidance That’s Easy to SwallowFood Allergies: A Complete Guide for Eating When Your Life Depends on It
Medical Information & Log Book
Eosinophilic EsophagitisBookFactory® Eosinophilic Esophagitis Log Book / Journal / Logbook
Eosinophilic Esophagitis Medical Information
- Eosiniophilic Esophagitis from Cleveland Clinic
- Eosiniophilic Esophagitis from Mayo Clinic
- Eosiniophilic Esophagitis MedicineNet
- American Partnership for Eosinophlic Disorders (APFED)
- What is Eoe? from the American Partnership of Eosinoophilic Disorders
- Eosinophlic Esophagitis from Cincinnati Children’s Hospital
- Eosinophlic Esophagitis on Wikipedia
Cooking for Eosinophilic Esophagitis
Single Ingredient Cooking from Apfed
Allergy Free Cookbooks
Whether you are doing eliminations or need to make permanent changes, cooking completely changes when you have an EoE diagnosis in your home. Here are several allergy free focused cookbooks that deal with some or all of the top 8 allergens that EoE patients normally have to avoid.
Eosinophilic Esophagitis Articles
Study finds cause of eosinophilic esophagitis—mysterious food allergy, suggests new treatment strategy
EoE Stories and Blogs
Index of EoE stories at Food Matters
Eosinophilic Esophagitis Research and Funding
CURED Foundation (Campaign Urging Research for Eosinophlic Disease)
Videos about Eosinophilic Esophagitis
Sometimes it is easier to understand eosinophilic esophagitis when those who suffer with it explain it.
Go here for more videos on YouTube about Eosinophilic Esophagitis.
Eosinophilic Esophagitis image from Wikipedia
Wow, I was surprised to see all this information about Eosinophilic Esophagitis. My husband has this. He has been able to calm his symptoms down with a keto diet, but it isn’t perfect.